I’m not one to vent a lot. At least, I don’t think I am. I like to be the one who has things all figured out, is well-adjusted, etc. etc. etc. Blah, blah, blah.
But the last few weeks have been rough. Why, you ask? Is it because something happened? Something horrible? Someone died? No. Nothing like that. I’m just overwhelmed. Most people will brush what I’m about to write about off as “no big deal”, and that’s fine. It is to me, and unless you’ve experienced it, you peobably won’t understand, nor do I expect you to. It’s just something I want to get out there. I’ve written about my migraines before. I don’t remember to what extent or what I’ve said. But they’ve been pretty bad. I got one on September 6 and it never really has left. It hasn’t been totally debilitating. I haven’t been constantly throwing up or anything. But I did miss my first two days of work in two and a half years and I did end up at the urgent care clinic for some shots of painkillers. Between then and now, I’ve been trying to figure out what’s going on. The migraines have gone on for about four years – since the “Des Moines Cockroach Incident” (Now to be referred to as the DMCI). But recently, along with the horrible migraines that leave me nauseous and barely functioning (and of course, with the ever-pleasant post-migraine hangover), I’ve had this constant headache. Not as bad as a migraine, but one that all the motrin in the world won’t help. Or all the Naprosen, etc. (Which I guess is the same as motrin…) Shooting pain on the side of the head, pulsing, throbbing, you name it, I’ve had it. A lot right behind the eyes recently. That is not to be confused with a sinus headache, because sinus headaches ONLY come alongside sinus infections. (Another commonly misdiagnosed problem) I’ve had sinus infections for almost 5/6 of my life, so I think I’m pretty well-versed in the telltale signs of sinus infections.
Needless to say, this finally warrented another trip to a doctor, this time, to a new one in Boone – one recommended to me by a friend of mine, and confirmed as a good doctor by another couple friends. He was. He knew what he was doing. He listened to me, as well as a GP doctor will. He’s not a headache specialist, so naturally he wasn’t going to take a five hour history of my headaches. But he did some general tests and asked me about my headaches – where they were, what they felt like, how long I had had them for, medications I had tried, when I usually got them, if I exercised, what I ate – all those sorts of things. I came out of his office with my suspicions confirmed. My migraines had transformed. That happens sometimes with people who have gotten migraines for a number of years.
Anyhow, long story short, I have the new label of migraines plus CDH (chronic daily headaches). The CDH is what I have been suspicious of, since the last few weeks my migraines/headaches have seemed a bit different. A little less intense, but still resistent to OTC drugs or my old Naprosen prescription. Now, you might not think this is a big deal. You might think “So? I get headaches every day, too.” If you do…like, really do…you should get to a doctor. It’s not normal. And here’s the thing. I don’t want pity or anything. That sucks. This already sucks. I just want some understanding. Because no one seems to understand headache problems. I’ve spent four years trying to explain that I’ve cancelled something or not shown up to something or that I’m “not feeling well” because I have a headache, and I just get blank stares. Like it’s no big deal. It IS a big deal. It’s painful. And it SUCKS to not have the ginormous cocktail of drugs you’ve tried actually work. Nothing seems to work, but you still have to function. There are still things I need to do. I can’t curl up in a ball in a dark room every time I get a headache, because that would be…well, daily! LOL. Not going to work out so well. I still do things. But sometimes, when it gets super out of control, I need to stop. I need to cancel things. I need to go sit in a dark room. And that just needs to be okay with people.
That’s all
So the Good Doctor started me on a nice happy new drug. It’s an anti-seizure drug (obviously a lower dose that people with epilepsy). Topamax has some scary side effects to it. So far I’m doing okay, with minimal side effects. I’m only experiencing the extreme drowsiness and some dizziness so far. But I’ve only taken two pills.
I’ve got a month before I’m at the dose he wants me at. I’ve got a couple new rescue drugs to take when I actually GET a headache. (Oh, the Topamax is a daily preventative drug to try to keep the headaches either away or at a minimum) The one didn’t work, but I have permission to tack the other one onto it next time and see if that does the trick.
So if I’m a walking zombie, that’s why. It’s the drugs talking. *Giggle* Really, I’m trying to stay positive about the whole thing. It’s just frustrating sometimes (well, a lot) because I have people who think I’ll just be on the drugs for a couple months and then the problem will be gone and I won’t have any more headaches. Somehow, without divine intervention, I don’t think that’s going to be the case. I’ve spent four years and a lot of money trying to get rid of them, and I’m not sure that this time it’s going to be a “quick fix” either. CDH isn’t something that just “goes away”. I don’t think I’ve thought about that enough to let it sink in, but I think I’m in this for awhile.
Prayers are appreciated, of course. And understanding is, also.
People people!
PS. I got another ALIEN!!!!!